My name is Anielei Rose Greenman, and . I am 5 years
old and I have three sisters:
Cosette, Brianna, and Aja Marie. I like to run and play,
I like my baby dolls, barbies
(Oh! oh! Polly Pockets!) and I play shopping and cooking and I like
playdoh and swimming and riding my bike.
I like to dance and sing and I like to look at books. I am learning to
add and subtract
numbers, and I can read! I have Eosinophilic
Gastroenteritis, or EOS.
I also have allergies to bunches of stuff outside and asthma too. I get
to blow into
this really cool measure thing everyday called a peak flow meter that
can tell if I
am having a hard time breathing. I try to make it go up real high!
My allergy doctor just told me I have both cold urticaria and
cholinergic urticaria at
the same time. He said that is very rare to have them both together,
but the cold urticaria
can be dangerous, so I have to be careful. He gave me an epipen and
some more medicine to
take everyday.
EOS
That probably doesn't mean much to you, but to me it means
that my tummy hurts
most of the time, and I don't feel very good, and I can't eat
very many things. It is
called eosinophilic gastroenteritis, EOS, or
sometimes EG or EGID. For more
information on EOS you can click on the
"What is EOS?"
link on the left.
Food List
Here is a list of the foods that I can eat now:
Potato
Corn
Beef
Apple
Grapes
Chicken
I did not pass my banana trial : ( I wonder what I will get
to try next?
What can I expect?
Feeding and GI tubes. I drink a sippy cup with Neocate mostly, but when
I
am
older, I may have to get my food through a tube. Right now there is
no cure for
what I have so the best we can do now is to learn to live
with it the best we can.
As long as I stick only to the foods I can
tolerate and have my Neocate, I do
pretty well. I will continue to
trial different foods, and I hope that I will be able to
eat more
things as I get older.
Doing crafts at the
Nature Center
These are my sisters. Cosette is 15, Brianna is 10, and Aja Marie
is 4.
I like to play with my sisters.
My mommy and daddy are the
best. They take care of me. I like when we all go
camping together -
that is really fun! My favorite is making sand castles at the beach.
