This
page is about my sister, Aja Marie. She also has EOS, but hers is in
her esophagus,
sometimes called EE, or eosinophilic esophagitis. She is also on a strict Neocate
diet. She may be going to the
Cincinatti Children's Hospital for
diagnostics soon. I went a couple years ago. They are
the best and do research to help kids with eosinophilic disorders -
like me and Aja.
Aja loves Dora the Explorer and her baby doll,
Harriet. Aja and
I play barbies, and look
at books, and pretend cooking. We love to play
dress up! She likes to swing on the
swing and ride her
AmTryke. We play
mermaid in the pool or the bathtub. And camping!
Aja loves to
go
camping by the lake and playing in the sand at the beach.
PT and OT
Aja did go to PT and OT every week, but she graduated just
last month. They did all they
could for her and now she does her exercises and things at home. She
has sensory
integration and some physical muscle problems as well. She
doesn't eat
very well, and still
has problems speaking because of
the muscles in
her mouth and jaw. She goes to School
for her
speech class. Her legs get tired really fast, and her feet
turn in so she falls down alot.
She has to wear braces on her feet to
help her walk right.
AmTryke
She just got a really cool AmTryke from Ambucs
that she loves to ride.(I'm riding a two-
wheeler!) It will help her legs
and arms to get stronger. Aja is under-responsive to movement
experiences, so she craves intense movement, and seems always
to be in
upside-down
positions, swinging on the swing for long periods,
and
on-the-go constantly -- jumping,
bouncing, rocking
and swaying. She always asks daddy to swing heraround and turn
her
upside down.
She is also over sensitive to noise and crowds - she just
doesn't do
well around a whole bunch
of noisy people. She can't seem to get down a
lot of the food she can eat. She gets to eat one
more food
than I do -
she gets to eat rice! But most of the time she chews it up and
then
spits
it out, because she can't swallow it. Then when her mouth gets
tired - way before I get done
eating! - she is done for that
meal. I
get in trouble for trying to eat her food, but she is
leaving it
anyway, so I don't understand why I should get in trouble for
THAT.
Aja
is a great little sister and I really like to play with her, but
sometimes she just doesn't know
how hard she is touching and getting my
attention seems like she is hitting me. Even Mommy yells
when
Aja is
trying to get her attention!
Aja copies me all the time! She is my little sister.
