apfed
APFED - The American Partnership for Eosinophilic Disorders is a
non-profit
advocacy organization for those living with eosinophilic esophagitis,
eosinophilic gastroenteritis, eosinophilic colitis, hypereosinophilic
syndrome, and other eosinophilic disorders. We are a resource for
patients, their families, physicians and the medical community.
http://www.apfed.org/
CURED - Campaign Urging Research for Eosinophilic Disease - CURED is a
not for profit foundation dedicated to those suffering from
eosinophilic enteropathy, which includes eosinophlic esophagitis,
eosinophilic gastroenteritis, eosinophilic colitis and other
eosinophilic disorders.
http://www.curedfoundation.org/index.html
These are videos that help explain a little more about eosinophilic
disorders. Make sure you have some tissue handy and don't say your
weren't warned!
These are very touching and really hit home for families who have kids
that are going through this, such as our 2 little ones, Aja and
Anielei.
APFED U-Tube Video
http://www.youtube.com/watch?v=em4WFciW2Mc
CURED U-Tube Video
http://www.youtube.com/watch?v=8GsCcoVGo3g&feature=player
Help spread the word about these disorders so that the research will
continue.
Thanks!
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